Adults Archives - FOXP1 Foundation

December 2025

Improving prognostication for individuals with FOXP1 syndrome: Parent-reported practical and social skills in 52 individuals

Saskia Koene, Marieke Rothuizen-Lindenschot, Fabienne G. Ropers, Gijs W.E. Santen, Ruth Braden, Angela Morgan, Jannelien Wieland, Helma B.M. van Gameren-Oosterom

52 parents surveyed about practical and social skill development in FOXP1 syndrome across the lifespan.

Adaptive Behavior Adults Daily Living Skills Parent-Reported Prognosis

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February 2025

Adolescents and adults with FOXP1 syndrome show high rates of anxiety and externalizing behaviors but not psychiatric decompensation or skill loss

Tess Levy, Hailey Silver, Renee Soufer, Audrey Rouhandeh, Alexander Kolevzon, Joseph Buxbaum, Paige M. Siper

Reassuring findings: continued skill gains over time, no developmental regression, no neuropsychiatric decompensation.

Adolescents Adults Anxiety Behavior Prognosis

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