Community

Our Ambassadors

Our Ambassador Program plays a critical role in expanding our outreach and building global community support for families affected by FOXP1 syndrome. Parents volunteer to be their National or Regional Ambassador. They are key in fostering communication, providing support, raising funds and awareness within their country or with those that speak the same language. Countries with a dedicated Ambassador are listed below in alphabetical order. Each listing includes the country or region, ambassador first name, language notes where available, and a contact link.

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Nordic Countries

Heli

Covers Norway, Sweden, Finland, Denmark, and Iceland

Contact Ambassador

Global Support Network

About the Ambassador Program

The program provides opportunties to build connections and a FOXP1 community with those in your country, region or who speak the same language.

Ambassadors are parents of children with FOXP1 syndrome who volunteer their time and expertise to support others navigating the same diagnosis.

An ambassador can help you with:

  • Navigating local support services and healthcare systems.
  • Interpreting research papers or translated information.
  • Connecting with other FOXP1 families in your country or region.
  • Offering a listening ear to discuss the diagnosis, therapy strategies, and day-to-day challenges.
  • Helping families feel less alone, even when they are the only diagnosed family in their country.
  • Organising fundraising events to support the International Foundation.
  • Advocating for changes in local government services or policies.
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Flag of Israel
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30+
Country and regional listings
Local
Language and cultural guidance
Parent
Lived-experience support

How to Connect With Your Ambassador

  • 1 Find your country or region in the directory above.
  • 2 Reach out by email with your name and phone number.
  • 3 Your ambassador will be in touch within a few days.

Questions about the program or volunteering? Contact us at info@foxp1.org.

Volunteer

Become an Ambassador

Is your country not represented in the directory above? The Foundation is always looking for dedicated parent volunteers to expand the program and ensure every FOXP1 family around the world has access to local support.