Family Stories
Every individual with FOXP1 syndrome has a unique story. These are some of them.
Fox Friends: Meet Violet
Diagnosed in December 2019, Violet is the brightest light in the lives of all who know her.
Read Violet’s Story
Fox Friends: Meet Mattia
A healthy, happy 6-year-old who can cycle and hike for miles — Mattia loves people and life.
Read Mattia’s Story
Fox Friends: Meet Isla
Diagnosed at age 5 after years on oxygen. Now 9, Isla is a determined skier and cuddly little dreamer.
Read Isla’s Story
Fox Friends: Meet Levi
Born in Belfast in 2003, Levi's family's hard-won advice offers hope to those just starting out.
Read Levi’s Story
Fox Friends: Meet Joey
Diagnosed at 5 after years of living "in the grey" — Joey's family finally found community.
Read Joey’s Story
Fox Friends: Meet Fenn
Diagnosed at age 3 in the Netherlands, Fenn's optimism wraps everyone around his little finger.
Read Fenn’s Story
Fox Friends: Meet Brendan
Diagnosed in September 2019, Brendan's sweet nature never fails to make everyone smile.
Read Brendan’s Story
Fox Friends: Meet Kieran
Diagnosed at 17 after 15 years of searching. Now 21, Kieran's smile lights up every room.
Read Kieran’s Story
Fox Friends: Meet Hailey
Diagnosed in July 2020 after 16 years on a unique path — Hailey's perseverance inspires every day.
Read Hailey’s Story
Fox Friends: Meet Eyston
In November of 2014, when Eyston was 7 months old, he went to live with his grandparents after being removed from his mother’s care for medical neglect. He was supposed to have cranial surgery at 3 months old to open the sagittal suture and correct Craniosynostosis, but instead had this procedure completed at 9 months […]
Read Eyston’s Story
Fox Friends: Meet Sebastian
Diagnosed at age 8, Sebastian's love of sports and sweet spirit have inspired his whole family.
Read Sebastian’s Story
Fox Friends: Meet Willow
A warrior princess diagnosed with FOXP1 syndrome at age 3 after years of searching for answers.
Read Willow’s Story