FOXP1 Grandparents
Being a grandparent of a child with FOXP1 syndrome brings its own unique joys and challenges. This is your space.
For Grandparents
A Community for Grandparents
When a grandchild is diagnosed with FOXP1 syndrome, grandparents often find themselves navigating unfamiliar territory — wanting to help, but unsure how. The FOXP1 Grandparents Group provides a dedicated space to connect with other grandparents, share experiences, ask questions, and find the support and information you need.
Grandparents are a great resource for their families. You may not live close enough to help with child care, but you may have time to volunteer to help your grandchild and family. Grandparent volunteers are needed to organise programs, run fundraiser events, and advocate for your grandchild.
Whether you are looking to better understand the condition, find ways to support your family, or simply connect with others who understand what you are going through — you are welcome here.
Inside the Grandparents
Group
Peer Connection
Meet grandparents at every stage — from newly diagnosed families to those raising adult grandchildren with FOXP1. Join the Foundation to receive monthly newsletters with grandparent events, fundraising events, medical research and community events.
Trusted Information
Plain-language explanations of FOXP1 syndrome, therapies, and school supports so you can engage with confidence.
Ways to Help
Private Conversations
A moderated space to ask the questions you may not want to ask your own children. Reach out to us at info@foxp1.org.
Events & Meetups
Grandparents are warmly invited to our biennial Family Conference and regional Ambassador gatherings.
A Steady Community
Join Us