FOXP1 Community Groups
A growing number of groups around the world are dedicated to connecting individuals and families affected by FOXP1 syndrome. Find your community below.
Find Your People
Connect With Your Community
Whether you are looking for a global community, a country-specific group, or a research-focused network, there is a place for you. If you know of a group that should be included on this page, please let us know and we will be happy to add it.
Directory
Global & Regional Groups
Friends and Family of FOXP1
A Facebook group created in October 2016, focused on connecting FOXP1 families around the world. The group is active and members frequently post and answer each other's questions.
Asociación FOXP1 España
The Spanish FOXP1 Association, with both a website and a Facebook page.
Association FOXP1 France
The French FOXP1 Association, with both a website and a Facebook page.
Stichting Kind Beter
Established in the Netherlands to raise funds for large-scale FOXP1 research in children.
Directory
Affiliated Organizations
FOXP1: Simons Searchlight Community
Open to individuals interested in FOXP1, including families and researchers. Part of the broader Simons Searchlight rare disease research network.
FOXP1 Medical Research Foundation (FMRF)
A foundation dedicated to advancing medical research to discover treatments, and ultimately a cure, for FOXP1 syndrome.
NORD Rare Action Network
The National Organization for Rare Disorders' advocacy network, working to improve the lives of people living with rare diseases.
Monthly Community Zoom Chats
The Foundation hosts monthly Zoom chats for parents and friends to share stories, ask questions, and connect with one another in a safe and open environment. Join Kate Mowery and the community on the third Saturday of every month.