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 FOXP1 Syndrome is now Recognized 

Share with your medical community that two key online rare-disease databases GARD and OrphaNet, now specifically reference the clinician-recognized and modern term "FOXP1 Syndrome".  

Check out Gard   and   OrphaNet

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Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, encouraging research, and raising awareness.



"While there is still so much unknown and no real changes in our day-to-day life with the diagnosis, it was a relief to have an answer and explanation for everything about Joey that had felt "off". It is amazing to feel the support from the other families and to know we are not alone."

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