Get Involved
Get Involved
There are many ways to support the International FOXP1 Foundation and the families we serve. Find the right fit for you below.
How You Can Help
Ways to make a
difference
Whether you have five minutes or five hours a week, whether you can give your time, a dollar or your professional skills — every contribution moves this mission forward.
Join Us
Stay connected, be counted, and become part of the global FOXP1 community. Sign up for the Foundation newsletter, meet local families and be added to the FOXP1 Census.
Give
Your financial support directly funds research, family programs, and community initiatives.
Volunteer
The Foundation relies on the dedication and passion of volunteers to advance its mission. Lend your time and skills to make a difference.
Fundraise
Organize a fundraising event or campaign and help drive research forward — birthdays, races, workplace giving, and more.
Advocate
Use your voice to advocate for policies and programs that support the rare disease community and accelerate treatments for FOXP1 syndrome.
Participate in Research
A lot remains to be learned about FOXP1 syndrome. Your participation in research helps speed the development of therapies and treatments for families like yours.
Where Your Support Goes
Every gift, every hour, every
voice
Powered by our community and led by a volunteer Board of FOXP1 parents working in partnership with our Executive Director.
Research
Funding grants, patient registries, and natural history studies that accelerate our understanding of FOXP1 syndrome.
Family Support
Ambassadors, care guidelines, translated resources, and help families shared lived experiences.
Community & Awareness
Meetups, family conferences, and awareness campaigns for FOXP1 syndrome have grown dramatically worldwide.
Annual Gathering
Join us at the FOXP1 Family Conference.
Our flagship international gathering brings families, researchers, and clinicians together for three days of programming, connection, and joy. It’s the single best way to plug in — as a family, a volunteer, a fundraiser, or an advocate.
Get Involved
Make a donation today
For US residents, your gift is tax-deductible on Federal income tax. EIN 85-4079051.