Meet the Foundation

Built by families. For families.

The International FOXP1 Foundation is a registered 501(c)(3) nonprofit dedicated to supporting families and individuals affected by FOXP1 syndrome through knowledge, community, research, advocacy, and hope

Who We Are

A global organization, parent-led

Founded in 2020 by a group of parent volunteers, we have grown into a global organization serving families, researchers, and advocates across more than 60 countries. Read on to learn more about the Foundation’s history, team, and focus.

About

How the Foundation was founded — and what drives our mission.

Team

Meet the Executive Director and Board of Directors leading our work.

Strategic Plan

Read our 2024–2027 Strategic Plan and the four pillars guiding our priorities: Research, Support, Community Building, and Information Sharing.

Annual Report

Read our latest Annual Report — what we achieved this year and where your support went.
Get Involved

Join the Foundation

Sign up in one step to receive the monthly newsletter, be counted in the FOXP1 Census, and connect with our global community.