2024 – 2027 Strategic Plan
On behalf of the Board of Directors, we are pleased to present our 2024–2027 Strategic Plan — outlining our vision, goals, and priorities as we work to build a stronger global community for individuals and families affected by FOXP1 syndrome.
From the Board
A Message From Our Board
This plan outlines our strategic vision for the next three years as we continue in our mission to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness.
We aim to strengthen connections within the community, expand educational resources, and accelerate research to improve outcomes for those affected. By continuing to advocate for increased support and collaboration, we are committed to making lasting progress for individuals with FOXP1 syndrome.
Thank you for your ongoing support as we move forward together.
— The International FOXP1 Foundation Board of Directors
Our Four Strategic Objectives
Pillar 1 — Research
Pillar 2 — Support
Pillar 3 — Community Building
Pillar 4 — Information Sharing
In Practice
What each pillar looks like in
action
Pillar 1 · Research
Advancing the science.
- Fund targeted research grants in partnership with leading institutions.
- Grow enrollment in the FOXP1 RARE-X family data collection and Citizen medical record analysis programs
- Support natural history studies.
- Connect researchers with families through conferences and forums.
Pillar 2 · Support
Meeting Families Where They Are.
- Expand the Ambassador Program into more countries and languages.
- Publish practical care guidelines, therapy resources, and diagnosis toolkits.
- Grow dedicated groups for grandparents, siblings, and adult individuals.
- Offer travel scholarships to make family conferences accessible.
Pillar 3 · Community Building
Bringing Families Together
- Host a biennial international family conference and regional meetups.
- Deepen partnerships with rare disease organizations worldwide.
- Create new volunteer pathways for parents, grandparents, siblings, and allies.
- Celebrate our community through stories, milestones, and awareness days.
Pillar 4 · Information Sharing
Spanish members, 2025 Family Conference
- Publish a monthly newsletter with research and community updates.
- Maintain a plain-language library on FOXP1 syndrome and genetics.
- Translate key resources into more languages each year.
- Share research findings, family stories, and Foundation news in real time.
How We Measure Progress
Guiding principles for the
next three years
Family-Led
Every decision starts from what our families tell us they need — not what we assume.
Global
Evidence-Based
Read in Full
Read the Full Strategic Plan
ANNUAL REPORT
2025 Annual Report
We invite you to read our 2025 Annual Report, highlighting the progress made possible by the FOXP1 community, including expanded family support and educational resources, advances in research and advocacy, growing global connections, and the generosity of our donors, volunteers, and partners.
The report offers a closer look at what we accomplished in 2025 and how, together, we are building a future full of possibilities for the FOXP1 community.