1. Introduction

The International FOXP1 Foundation (“we,” “us,” or “our”) is committed to protecting your privacy. This Privacy Policy explains how we collect, use, disclose, and safeguard your information when you visit our website, make a donation, register for events, or interact with our programs. By using our site, you consent to the practices described in this policy.

2. Information We Collect

We collect information that you voluntarily provide to us, as well as certain information automatically collected when you interact with our website.

Information You Provide

• Contact information: Name, email address, mailing address, and phone number when you subscribe to newsletters, register for events, or contact us.
• Donation information: Payment details are collected and processed securely by our third-party payment processors. We do not store complete credit card numbers on our servers.
• Event registration: Information related to conference attendance, dietary restrictions, accessibility needs, and emergency contacts.
• Communications: Content of emails, messages, or survey responses you send to us.

Automatically Collected Information

• Log data: IP address, browser type, operating system, referring pages, pages visited, and timestamps.
• Device information: Device type, screen resolution, and general location (city/country level).
• Cookies and similar technologies: See our Cookies section below for details.

3. How We Use Your Information

We use the information we collect for the following purposes:

• To process donations and issue tax receipts (the Foundation is a U.S. 501(c)(3) nonprofit, EIN 85-4079051).
• To send Foundation news, event invitations, research updates, and fundraising communications you’ve opted into.
• To respond to inquiries and provide community support to families, clinicians, and researchers.
• To register you for events, conferences, and programs.
• To improve our website, programs, and user experience through analytics and feedback.
• To comply with legal obligations and protect our rights.

4. Cookies & Tracking Technologies

We use cookies and similar tracking technologies to enhance your browsing experience, analyze site traffic, and understand where our visitors come from. You can control cookies through your browser settings. Disabling cookies may affect certain features of our website.

We use analytics services (such as, but not limited to, Google Analytics) to understand how visitors interact with our site. These services may collect information about your online activities over time and across different websites.

5. How We Share Your Information

We do not sell, rent, or trade your personal information to third parties. We share information only in the following circumstances:

• Service providers: We work with trusted third-party providers for payment processing, email delivery, website hosting, and analytics. These providers are contractually bound to use your information only for the services they provide to us.
• Legal requirements: We may disclose information when required by law, court order, or governmental regulation.
• Protection of rights: We may disclose information to protect our rights, property, or safety, or that of our users or the public.
• With your consent: We may share information with third parties when you have given us explicit permission to do so.

6. Data Security

We implement appropriate technical and organizational measures to protect your personal information against unauthorized access, alteration, disclosure, or destruction. This includes encryption of data in transit (SSL/TLS), access controls, and regular security assessments. However, no method of transmission over the internet is completely secure, and we cannot guarantee absolute security.

7. Children’s Privacy

Our website is not directed at children under 13, and we do not knowingly collect personal information from children under 13. If you believe we have inadvertently collected information from a child under 13, please contact us immediately and we will promptly delete it.

8. Your Privacy Rights

Depending on your location, you may have certain rights regarding your personal information:

• Access: Request a copy of the personal information we hold about you.
• Correction: Request that we correct inaccurate or incomplete information.
• Deletion: Request that we delete your personal information, subject to legal retention requirements.
• Opt-out: Unsubscribe from marketing emails at any time by clicking the “unsubscribe” link in our emails.
• Data portability: Request a copy of your data in a structured, machine-readable format.

To exercise any of these rights, please contact us at info@foxp1.org.

9. Data Retention

We retain your personal information for as long as necessary to fulfill the purposes for which it was collected, comply with legal obligations, resolve disputes, and enforce our agreements. Donation records are retained for at least seven years to comply with U.S. tax regulations.

10. International Transfers

The Foundation is based in the United States. If you access our website from outside the U.S., your information may be transferred to, stored, and processed in the U.S. or other countries where our service providers operate. By using our site, you consent to such transfers.

11. Changes to This Policy

We may update this Privacy Policy from time to time to reflect changes in our practices, legal requirements, or technology. We will post the updated policy on this page with a revised “Last updated” date. We encourage you to review this policy periodically.

12. Contact Us

If you have questions, concerns, or requests regarding this Privacy Policy or our data practices, please contact us at info@foxp1.org or by mail at International FOXP1 Foundation, P.O. Box 164, Hudsonville, MI 49426.