Study Recruitment Support
Recruitment is often the single biggest barrier to rare-disease research. The Foundation partners with researchers to help every approved study reach the FOXP1 families most likely to benefit.
For Researchers
A trusted bridge between science and families.
The International FOXP1 Foundation connects a global community of families, clinicians, and Scientific Advisory Board members. When a study is IRB-approved and meets our review criteria, we help you reach the right participants — quickly, ethically, and at no cost to your research budget.
All promotion requests are reviewed by the Foundation team in consultation with our SAB to ensure scientific validity, participant safety, and clarity of participant-facing materials.
What We Can Help With
Family Newsletter
Community Channels
Promotion across our private family group, international and regional ambassadors, and social channels.
Study Listing
Conference Visibility
SAB Coordination
The Process
How to submit a study
1. Email us. Provide your study details and objectives in this form, including your protocol summary, IRB approval letter, and recruitment timeline.
2. Foundation review. Our team, with SAB input as needed, reviews your submission — typically within two weeks.
3. Materials prepared. We work with you to finalize a plain-language study summary for families.
4. Promotion begins. Your study is added to the site, featured in the newsletter, and shared through community channels.
Submitting a study for promotion?
Complete the research request form with your protocol summary, IRB approval, and recruitment timeline.