Research Projects
Intake Form

Thank you for your interest in working with the International FOXP1 Foundation (IFF) to promote your research project! To help us evaluate your proposal, please complete the following form. We will provide a response to your primary contact within 2 weeks. Please note "*" indicates a required field.

Research Projects Application to International FOXP1 Foundation

PI First name

PI Last name

Institution/Organization Name

Primary contact first name if not PI

Primary contact last name if not PI

Coordinator/primary contact Email

Phone

Institution/Organization URL

1. The IFF has an established data collection program (DCP; registry) with RARE-X. This program is collecting a wide range of background and longitudinal demographic, genetic, medical history, behavioral, cognitive, and other data about individuals with FOXP1 syndrome. We have established this DCP in order to facilitate research projects and reduce the burden on our members by providing researchers access to basic descriptive data that have been repeatedly requested from researchers in previous projects. We hope researchers will take advantage of this data in order to

(a) expand the volume of data for their research and

(b) simplify or eliminate basic questionnaires that may be part of the data scope of their projects.

1A. Have you worked with RARE-X in the past?

Yes

1B. If not, are you willing to do so?

Yes

1C. Does your Institution/Organization have an existing Data Protection Agreement with Global Genes/RARE-X ?

Yes

Not sure

2. Descriptive Title of Project

3. Primary purpose of this study (1-2 sentences)

4. Summary description of the study including the following:

4A. Scientific background

4B. Significance for patients and/or families

4C. Specific aims/Research questions

4D. Research methods

4E. Target number of participants

4F. Plans for dissemination of research findings

4G. Timeline for this project

4H. Non-Technical Summary suitable for sharing with the FOXP1 community. Please ensure the text is written at a high school reading level or below

Thanks for submitting your research project with the International FOXP1 Foundation. We'll get back to you within the next few weeks. If you have any questions please email info@foxp1.org

Research Projects Intake Form

Research Projects Application to International FOXP1 Foundation

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Research Projects
Intake Form