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FOXP1 Conference Schedule

Wednesday June 21st

Meet and Greet

4:00 - 8:00 pm


The Irish American Society Hall

297 Willis Ave.

Mineola NY

❖ Registration desk will be open

❖ An opportunity to meet other families and talk with researchers in the field of FOXP1

❖ Merchandise will be available

❖ Cash bar will be open 4:00 - 7:00 pm

❖ Pizza & salad buffet will be available​​

Participate in the Dr Lipner research study that will assess the prevalence of dermatologic manifestations of FOXP1 syndrome.  Kaya Curtis will be on site to conduct the interviews.

❖ Poster boards from the following researchers will be on display

Dr Genevieve Konopka, UTSW, Texas

➢ Prof. Dr. Willeke van Roon, LUMC, The Netherlands

➢ Dr Saskia Koene, LUMC, The Netherlands

➢ Dr. Annemiek Linn, University of Amsterdam

➢ Dr Ruth Braden, Murdoch Childrens Research Centre, Melbourne Australia

➢ Heather Renton, Melbourne Australia

➢ Dr. Shari Lipner, Weill Cornell Medical Center, NYC   Kaya Curtis will present the poster "The Potential of N-Acetylcysteine for Treatment of Body Focused Repetitive Behaviours: A Literature Review"

➢ Eddie Russo, Autism Speaks

➢ RareX Data Collection Program

➢ International FOXP1 Foundation

Thursday June 22nd


8:00 am - 6:00 pm


The Irish American Society Hall

297 Willis Ave.

Mineola NY

7:30 am                 

1st bus leaves Long Island Marriott Hotel to the Irish Hall

8:00 am                

2nd and last bus leaves Long Island Marriott Hotel to the Irish Hall


8:00 am                

Registration desk is open

Continental breakfast

8:30 - 8:45 am

Foxes and siblings meet their volunteer caregivers

  • Under the age of 12 - Upstairs

  • 12 years and older meet-up near the front door

8:50 am                 

Older group on the bus to Mineola Memorial Park, 195 Marcellus Rd. (.6 miles)


9:00 am               

Conference Opens


9:15  - 10:05 am  

“Language development related to FOXP1”

Dr. Ruth Braden, Early Career Academic, The University of

Melbourne. Postdoctoral Research Fellow, Speech and Language

Group, Murdoch Children’s Research Institute

 ~ Live Streamed & Recorded


10:05 - 10:25 am    



10:25 - 11:20 am    

“Introduction to Managing Behaviour in Individuals with

Neurodevelopmental Disabilities” 

Dr. Cora Taylor, Assistant professor and clinical psychologist at Geisinger

Autism & Developmental Medicine

~ Live Streamed & Recorded


11:20 am        

Older group return from park

Children upstairs come down for lunch


11:20 - 12:20 pm    

Lunch Buffet


12:15 pm        

Children return upstairs with their volunteer caregivers

Older group meet up near the front door

12:20 pm        

Older group on bus for Monster Mini Golf at 645 Stewart Ave. Garden City

12:25 - 1:20 pm

“Genetics & Medication related to FOXP1”

Dr. Alex Kolevzon, Clinical Director Seaver Autism Center for Research and

Treatment. Professor Psychiatry and Professor Pediatrics   

~ Live Streamed & Recorded

1:20 - 1:30 pm    

Break    Please help move some of the chairs for the 2 breakout sessions


1:30 - 3:15 pm    

“Sibling Breakout Group” with Hailey Silver, and Thariana

Both are clinical research coordinators at the Seaver Autism Center.  

Meet-up near the front door 


1:30 - 2:15 pm    

1st Break Out Session

 “Medication & Anxiety”

with  Dr. Alex Kolevzon   

Meet at the back of the main hall


“Communication tools and strategies” 

with Dr. Ruth Braden

Meet at the front of the main hall, this will be a zoom meeting


2:15 - 2:25 pm    



2:30 - 3:15 pm    

2nd Break Out Session

“Puberty & Behaviour/Aggression”

with Dr. Cora Taylor

Meet at the front of the main hall


“Basics of Genetics and Gene Therapy”

with Karl Whitney and Chris Sullivan

Meet at the back of the main hall


3:15 - 3:30 pm    Break   

Please help move the chairs back to the front of the main hall


3:30 - 4:00 pm    

International FOXP1 Foundation Discussion with Adam Geller and Karl Whitney


4:00 pm        

Children join the parents in the main hall

Older group bus arrives from Monster Mini Golf


4:00 - 5:00 pm    

Social Hour

Cash bar will be open 4:00 - 6:00 pm


5:00 - 6:00 pm     



5:45 pm       

 1st bus leaves the Irish Hall to the Long Island Marriott Hotel

6:15 pm        

2nd bus leaves the Irish Hall to the Long Island Marriott Hotel

6:30 pm      

 Hall Closed

Friday June 23rd

A Day of Fun in the Park!

10:00 am - 2:00 pm


Harry Tappen Beach - Town of Oyster Bay

Tappen Picnic Area A & B

494 Prospect Ave, Sea Cliff, NY

Guest Speaker Saundra Gumerove

Relax and visit with new friends while watching your children play in the park

❖ Games for everyone ~ large and small!

❖ Face painting, play ground, bocce, soccer, basketball 

❖ Lunch will be available

❖ Informal group discussion with Saundra Gumerove, on legal guardianship, special

     education law, and adult life after school

❖ Saundra M. Gumerove is an Attorney at Law serving individuals & families with special needs in Jericho New York

❖ Please bring your lawn chairs and blankets and extras to share with those who did not drive

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