FOXP1 Conference Schedule
Wednesday June 21st
Meet and Greet
4:00 - 8:00 pm
The Irish American Society Hall
297 Willis Ave.
Mineola NY
❖ Registration desk will be open
❖ An opportunity to meet other families and talk with researchers in the field of FOXP1
❖ Merchandise will be available
❖ Cash bar will be open 4:00 - 7:00 pm
❖ Pizza & salad buffet will be available
❖ Participate in the Dr Lipner research study that will assess the prevalence of dermatologic manifestations of FOXP1 syndrome. Kaya Curtis will be on site to conduct the interviews.
❖ Poster boards from the following researchers will be on display
➢ Dr Genevieve Konopka, UTSW, Texas
➢ Prof. Dr. Willeke van Roon, LUMC, The Netherlands
➢ Dr Saskia Koene, LUMC, The Netherlands
➢ Dr. Annemiek Linn, University of Amsterdam
➢ Dr Ruth Braden, Murdoch Childrens Research Centre, Melbourne Australia
➢ Heather Renton, Melbourne Australia
➢ Dr. Shari Lipner, Weill Cornell Medical Center, NYC Kaya Curtis will present the poster "The Potential of N-Acetylcysteine for Treatment of Body Focused Repetitive Behaviours: A Literature Review"
➢ Eddie Russo, Autism Speaks
➢ RareX Data Collection Program
➢ International FOXP1 Foundation
Thursday June 22nd
Conference
8:00 am - 6:00 pm
The Irish American Society Hall
297 Willis Ave.
Mineola NY
7:30 am
1st bus leaves Long Island Marriott Hotel to the Irish Hall
8:00 am
2nd and last bus leaves Long Island Marriott Hotel to the Irish Hall
8:00 am
Registration desk is open
Continental breakfast
8:30 - 8:45 am
Foxes and siblings meet their volunteer caregivers
-
Under the age of 12 - Upstairs
-
12 years and older meet-up near the front door
8:50 am
Older group on the bus to Mineola Memorial Park, 195 Marcellus Rd. (.6 miles)
9:00 am
Conference Opens
9:15 - 10:05 am
“Language development related to FOXP1”
Dr. Ruth Braden, Early Career Academic, The University of
Melbourne. Postdoctoral Research Fellow, Speech and Language
Group, Murdoch Children’s Research Institute
~ Live Streamed & Recorded
10:05 - 10:25 am
Break
10:25 - 11:20 am
“Introduction to Managing Behaviour in Individuals with
Neurodevelopmental Disabilities”
Dr. Cora Taylor, Assistant professor and clinical psychologist at Geisinger
Autism & Developmental Medicine
~ Live Streamed & Recorded
11:20 am
Older group return from park
Children upstairs come down for lunch
11:20 - 12:20 pm
Lunch Buffet
12:15 pm
Children return upstairs with their volunteer caregivers
Older group meet up near the front door
12:20 pm
Older group on bus for Monster Mini Golf at 645 Stewart Ave. Garden City
12:25 - 1:20 pm
“Genetics & Medication related to FOXP1”
Dr. Alex Kolevzon, Clinical Director Seaver Autism Center for Research and
Treatment. Professor Psychiatry and Professor Pediatrics
~ Live Streamed & Recorded
1:20 - 1:30 pm
Break Please help move some of the chairs for the 2 breakout sessions
1:30 - 3:15 pm
“Sibling Breakout Group” with Hailey Silver, and Thariana
Both are clinical research coordinators at the Seaver Autism Center.
Meet-up near the front door
1:30 - 2:15 pm
1st Break Out Session
“Medication & Anxiety”
with Dr. Alex Kolevzon
Meet at the back of the main hall
“Communication tools and strategies”
with Dr. Ruth Braden
Meet at the front of the main hall, this will be a zoom meeting
2:15 - 2:25 pm
Break
2:30 - 3:15 pm
2nd Break Out Session
“Puberty & Behaviour/Aggression”
with Dr. Cora Taylor
Meet at the front of the main hall
“Basics of Genetics and Gene Therapy”
with Karl Whitney and Chris Sullivan
Meet at the back of the main hall
3:15 - 3:30 pm Break
Please help move the chairs back to the front of the main hall
3:30 - 4:00 pm
International FOXP1 Foundation Discussion with Adam Geller and Karl Whitney
4:00 pm
Children join the parents in the main hall
Older group bus arrives from Monster Mini Golf
4:00 - 5:00 pm
Social Hour
Cash bar will be open 4:00 - 6:00 pm
5:00 - 6:00 pm
Dinner
5:45 pm
1st bus leaves the Irish Hall to the Long Island Marriott Hotel
6:15 pm
2nd bus leaves the Irish Hall to the Long Island Marriott Hotel
6:30 pm
Hall Closed
Friday June 23rd
A Day of Fun in the Park!
10:00 am - 2:00 pm
Harry Tappen Beach - Town of Oyster Bay
Tappen Picnic Area A & B
494 Prospect Ave, Sea Cliff, NY
Guest Speaker Saundra Gumerove
❖ Relax and visit with new friends while watching your children play in the park
❖ Games for everyone ~ large and small!
❖ Face painting, play ground, bocce, soccer, basketball
❖ Lunch will be available
❖ Informal group discussion with Saundra Gumerove, on legal guardianship, special
education law, and adult life after school
❖ Saundra M. Gumerove is an Attorney at Law serving individuals & families with special needs in Jericho New York
❖ Please bring your lawn chairs and blankets and extras to share with those who did not drive