The International FOXP1 Foundation is a registered non-profit organization that is managed and staffed by parent volunteers. We are committed to supporting those who have been impacted by a FOXP1 diagnosis and to establishing regular venues for fundraising in an effort to further research into FOXP1 syndrome and possible treatments.
We have created a repository of information on symptoms, characteristics, and behavior patterns unique to our FOXP1 children, as well as best practices and the therapies that could enhance quality of life. As the scientific community expands their knowledge on FOXP1, so will our repository of information grow. Regular on-line events are scheduled to connect members from different corners of the globe, and family gatherings will be organized in the future to bring together members of the FOXP1 community.
The International FOXP1 Foundation will focus on 4 areas:
Supporting individuals and families affected by FOXP1 syndrome
Communicating to share knowledge, treatments and research of FOXP1 syndrome
Establishing a world-wide registry of children and adults with FOXP1 Syndrome
Supporting research into the treatment and understanding of FOXP1 syndrome
Board of Directors
Co-Founder & Co-President
Adam has worked in the information security industry for over 20 years. He currently serves as the Chief Product Officer for Exabeam, an information security investigation and analytics platform. Adam has a degree from Cornell University and maintains both the CISSP and CISM security industry certifications. In early 2020, Adam and Karl Whitney kicked off the idea of creating a formal foundation in order to better connect and create a community around FOXP1.
Adam lives in the San Francisco Bay Area along with his wife, daughter, and son. He is the proud father of an amazing daughter with FOXP1. He is excited to serve with Karl as the foundation’s first co-president.
Co-Founder & Co-President
Karl has a biomedical research and drug development background, which has helped him make connections with different researchers and to understand possible paths forward for researching and hopefully developing treatments for FOXP1 syndrome. Karl and Annie Whitney are parents to Jonah and Sadie. When Jonah was diagnosed at age 8 in 2013 with a FOXP1 mutation, Karl and Annie discovered and worked with RareConnect to set up a website to help families managing this rare condition find each other. Over time, the community has grown and coalesced to the point that establishing a foundation to support FOXP1 activities has become possible.
Karl and family live in Durham, North Carolina in the United States, and in his spare time enjoys photography, furniture making and wood sculpture, and hobbyist website development.
Kate is an attorney in Wilmington, Delaware, practicing in complex commercial litigation. She also serves on the Alumni Board of Wilmington Friends School and as Treasurer for the Richard S. Rodney Inn of Court, a non-profit association of legal professionals. She attended undergrad and law school at Washington & Lee University, and spent several years in Washington, DC before returning to Wilmington, Delaware, her hometown. Kate is married to Adam Mowery, the Treasurer of the Foundation. They have two sons, Crawford and Sidney. Their son, Crawford, was diagnosed with FOXP1 in April 2020.
Kate and Adam currently live in Chadds Ford, Pennsylvania and they are excited about the opportunity to serve on the Board as they explore the history, effects and future of the FOXP1 genetic disorder.
Adam is the owner of Mowery Environmental, LLC, an environmental consulting firm that works primarily with the agricultural industry in Pennsylvania, Delaware, Maryland, and New Jersey. Adam has an undergraduate degree in Environmental Studies from Bucknell University and a master’s degree in Resource Management from the University of Pennsylvania. Adam is married to Kate Mowery, the Vice-President of the Foundation, and together they have two sons, Crawford and Sidney. In the Spring of 2020, Crawford was diagnosed with FOXP1, which began their journey into connecting with other FOXP1 families and now serving on the foundation board.
Adam, Kate and their two boys live outside of Philadelphia. When not working or spending time with his family, Adam enjoys golfing and hunting.
Chris has a background in biomedical science and intellectual property law. He earned a BS degree in Microbiology from the University of New Hampshire before working as a technician in the Biochemistry Department of Boston University School of Medicine. Chris went on to earn a PhD in Biochemistry from Boston University and conducted Postdoctoral studies there and at the Bedford Department of Veteran’s Affairs Medical Center where he was awarded the VISN1 Career Development Award to conduct research in the field of neurodegenerative disease.
In 2012, Chris joined the law firm of DT Ward, PC, a law firm specializing in biomedical intellectual property law. After obtaining his registration to practice before the United States Patent and Trademark Office (USPTO), Chris went on to earn his law degree from the University of New Hampshire Franklin Pierce School of Law in Concord, New Hampshire and his membership to the state bar of the Commonwealth of Massachusetts.
Chris and his wife Kelly are the parents of two daughters, the oldest of which, Hailey, was diagnosed with FOXP1 syndrome in 2020 at the age of 16. After the diagnosis, they were excited to find an already growing community of parents engaging and supporting each other in raising and caring for these special individuals. Connecting with others in this community, Chris and Kelly were happy to help found the International FOXP1 Foundation, with Chris joining as the foundation Secretary.
Member At Large
Gail has been an active member of her community for many years, volunteering with organizations such as Special Olympics Ontario, Scouts Canada, and several local groups. She retired as a Senior Information Technology Project Manager with the Department of National Defense Canada after a 34-year career. Gail led the planning and implementation of national computer systems, and gained international experience working with NATO members from multiple countries. Gail and her husband Lorne have two adult sons, Graham and Darryl. Darryl was diagnosed with the FOXP1 genetic disorder when he was 32 years old. She always enjoys outdoors adventures with her family, whether they are kayaking, bicycling, snowshoeing, or camping.
Member At Large
Caroline has been a Registered Nurse since 2012. She graduated from the University of Indianapolis, where she also played basketball. Her nursing experience includes work in the pediatric transplant intensive care, the pediatric cardiac intensive care unit, and in pediatric home health care. Caroline and her husband have four beautiful daughters, one of whom was diagnosed with FOXP1 in 2018 at the age of 10 months. Caroline is a proud board member of the International FOXP1 Foundation and looks forward to connecting with other FOXP1 families from all over the world.
Member At Large