CREATING A FUTURE WITH ENDLESS POSSIBILITIES
Our mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, encouraging research, and raising awareness.
We aim to "create a future with endless possibilities" because we know there are no limits for our children. We have witnessed our FOXP1 kids talk, walk, run, bike, fish, ski, hike, and more. They are wonderful brothers, sisters, daughters, sons, friends, students, and teammates. Everyday, our kids teach us how to have patience, to show tolerance, to be sensitive, to accept differences and to be thankful for every milestone.
Join us on our adventure of growth and endless possibilities!
Did you miss the RARE-X webinar?
Do you have questions about the data collection program?
Watch the webinar about our new patient-led data collection program with RARE-X. Link
Learn why your participation matters to our FOXP1 kids.
OUR FOX FAMILIES
"While there is still so much unknown and no real changes in our day-to-day life with the diagnosis, it was a relief to have an answer and explanation for everything about Joey that had felt "off". It is amazing to feel the support from the other families and to know we are not alone."