The International FOXP1 Foundation
The International FOXP1 Foundation
A global community of FOXP1 families is here to welcome you.
Just Received a FOXP1 Diagnosis?
A diagnosis of FOXP1 syndrome raises ‘questions’ — where to start, what it means for your child’s future, and what support is available.
You don’t have to figure it out alone — our guide for newly diagnosed families is the best place to start.
- What to expect at each stage of development.
- How to build the right medical team.
- Which therapies to prioritize early.
- How to connect with a global community of FOXP1 families.
What Is FOXP1 Syndrome?
FOXP1 syndrome is a rare genetic disorder caused by a change to the FOXP1 gene on chromosome 3, which affects how the brain and body develop.
Although FOXP1 syndrome was first described fairly recently, scientists are steadily learning more about the syndrome each year. Click the button to learn more.
Find What You Need
The Foundation serves families, researchers, donors, and medical professionals at every stage of the FOXP1 journey. Find the pathway that is most relevant to you.
Newly Diagnosed
Community
Research
Get Involved
Donate, fundraise, volunteer, or advocate. Every contribution supports the Foundation’s mission.
Ways to Give
Make a one-time gift, become a monthly supporter, or explore tribute, stock, and legacy giving options.
Conferences
Voices From Our Community
Meet Violet — USA
Diagnosed in December 2019, Violet is the brightest light in the lives of all who know her.Read Violet's Story
Meet Mattia — USA
A healthy, happy 6-year-old who can cycle and hike for miles — Mattia loves people and life.Read Mattia's Story
Meet Isla — Canada
Diagnosed at age 5 after years on oxygen. Now 9, Isla is a determined skier and cuddly little dreamer.Read Isla's Story
Meet Levi — Belfast
Born in Belfast in 2003, Levi's family's hard-won advice offers hope to those just starting out.Read Levi's Story
Meet Joey — USA
Diagnosed at 5 after years of living "in the grey" — Joey's family finally found community.Read Joey's Story
Meet Fenn — Netherlands
Diagnosed at age 3 in the Netherlands, Fenn's optimism wraps everyone around his little finger.Read Fenn's Story
Meet Brendan — USA
Diagnosed in September 2019, Brendan's sweet nature never fails to make everyone smile.Read Brendan's Story
Meet Kieran — Canada
Diagnosed at 17 after 15 years of searching. Now 21, Kieran's smile lights up every room.Read Kieran's Story
The International FOXP1 Foundation is committed to building a global community that advocates for individuals and families affected by FOXP1 syndrome by supporting and empowering our community, advancing research, and increasing awareness.
A Worldwide FOXP1 Movement
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Join the Foundation
Latest News & Updates
A Closer Look at Research
Hey y’all! It’s Karl, President of the International FOXP1 Foundation, coming to you from Durham, North Carolina in the US. As one…
The International FOXP1 Foundation would like to thank Adam Mowery for his service as our founding Treasurer
The International FOXP1 Foundation would like to thank Adam Mowery for his service as our founding Treasurer As the parent of a…
Welcome Our Newest Board Members
The Board of Directors is pleased to welcome our two newest members. Each brings unique experience, perspective, and dedication to our community,…
2027 FOXP1 Family Conference
With Thanks To Our Supporters
Our Sponsors
Global Rare-Disease Partnerships
Trusted & Recognized
Contact the Foundation
- info@foxp1.org
- Available by appointment