There are a small but growing number of groups dedicated to the FOXP1 syndrome. If you know of a group that should be included here, please let us know and we will be happy to add it here.
Canadian FOXP1 Families
Facebook Group for Canadian families
Stichting Kind Beter
Stichting Kind Beter was established in The Netherlands to raise funds for a large-scale study FOXP1 in children.
Facebook Group for Italian families
RareConnect FOXP1 Community
RareConnect was launched in 2009 as a way of helping families with rare diseases connect across the world. They have decided to retire RareConnect’s media platform on Dec 1st, 2023.