There are a small but growing number of groups dedicated to the FOXP1 syndrome. If you know of a group that should be included here, please let us know and we will be happy to add it.
Friends and Family of FOXP1
Facebook group created in October 2016 focused on connecting FOXP1 families around the world. The page is quite active and members frequently post and answer each others' questions.
Canadian FOXP1 Families
Facebook Group for Canadian families
Stichting Kind Beter
Stichting Kind Beter was established in The Netherlands to raise funds for a large-scale study FOXP1 in children.
Facebook Group for Italian families
FOXP1: Simons Searchlight Community
This group is intended for individuals who are interested in FOXP1. Anyone interested in FOXP1, including families and researchers, are welcome to join this group.
RareConnect FOXP1 Community
RareConnect was launched in 2009 as a way of helping families with rare diseases connect across the world. They have decided to retire RareConnect’s media platform on Dec 1st, 2023.