Resources
As we collect additional resources, we will share them here:
Mapping out your child's special education needs or financial future can seem daunting, but having a plan can help ease your fears. This Resource Kit provides a list of resources in the United States, to help you plan and prepare for the future. It includes information on the following topics:
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Financial Planning
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Legal Guardianship
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Special Education Law/ Federal Laws
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American Academy of Pediatrics (AAP) Recommends Early Screening and Identification
Given the prevalence of developmental delays and disabilities, all pediatric primary care clinicians should be prepared to screen, identify, and care for children and youth with developmental delays and disabilities and their families. Early identification and intervention for developmental disorders are critical to the well-being of children and are the responsibility of pediatric professionals as an integral function of the medical home. Here are two articles that explains this recommendation.
From the American Academy of Pediatrics
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Developmental Surveillance and Screening Patient Care Overview video
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Promoting Optimal Development: Identifying Infants and Young Children With Developmental Disorders Through Developmental Surveillance and Screening paper
From Genetics in Medicine
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Exome and genome sequencing for pediatric patients with congenital anomalies or intellectual disability: an evidence-based clinical guideline of the American College of Medical Genetics and Genomics (ACMG) paper
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Murdoch Children's Research Institute (MCRI), Centre of Research Excellence Speech and Language has identified characteristics of a FOXP1-related speech and language disorder.