New to FOXP1
Welcome to the International FOXP1 Community!
We are glad you have found our website, as we hope this information will help you gain an understanding of the FOXP1 Syndrome. Most likely you have landed on this page because your child, or some one very dear to you has recently received the genetic tests results that they have FOXP1 syndrome. This website is maintained by the International FOXP1 Foundation, a non-profit organization registered in the United States, operated 100% by volunteers, and is connected with FOXP1 families around the globe.
As parents of children with FOXP1, we know the struggle to understand this condition, especially when one first receives the diagnosis. This page is a collection of quick links to information on this site that we think are the most important for families new to the FOXP1 community. As you search for a better understanding, please remember that the first diagnosis of FOXP1 syndrome was only in 2011, so this rare genetic disorder is very new and is just beginning to be understood by the research and medical communities. The Foundation's mission is to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, encouraging research, and raising awareness. We are always working to encourage more research around the globe.
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Speech, language, and FOXP1 syndrome Fact Sheet Link
by Dr Ruth Braden and Prof Angela Morgan, Translational Centre for Speech Disorders Murdoch Children’s Research Institute, Victoria Australia
FOXP1 Gene Guide Link
by Simons Searchlight. This guide was compiled by Simons Searchlight, the content in this guide comes from published studies about FOXP1-related syndrome. It outlines the basic characteristics of FOXP1 syndrome in an easy to understand format..
A Family Guide, Navigating Life after a Rare Genetic Diagnosis Link
by Simons Searchlight. This guide covers the steps from genetic diagnosis to finding resources and potential treatments for rare genetic neurodevelopmental disorders. It is designed to help caregivers and families navigate the complicated world of rare diseases.
Supporting Siblings of Children with a Rare Genetic Condition Link
by Rare Chromosome Disorder Support Group. This article summarizes the research findings of siblings and provides suggestions for ways that parents can support the positive development and well-being of all their children.