De
fundament
Momenteel is de registratie voor dit evenement gesloten. Kom later nog eens terug voor links naar een livestream tijdens het evenement en opnames die later worden geüpload.
De International FOXP1 Foundation samen met Kinder Beter
is verheugd om de
Onderzoeksconferentie 19 juni 2025 en
Familieconferentie 19 - 21 juni 2025
IJmuiden Nederland, Europa
Locatie
De FOXP1 Conferentie 2025 vindt plaats in IJmuiden, Nederland.
Basecamp IJmuiden zal het FOXP1- en broers-en-zussendagprogramma organiseren en ze hebben Tiny Houses te huur
Leonardo Hotel verzorgt de presentaties, break-outsessies en maaltijden. Ze verhuren hotelkamers.
Deze 2 locaties zijn direct tegenover elkaar, op slechts een paar minuten loopafstand.
IJmuiden ligt op 40 minuten van de internationale luchthaven van Amsterdam
Basecamp IJmuiden aan Zee
Lees verder ->
Leonardo Hotel IJmuiden
Seaport Beach Lees meer ->
Boekingsinstructies ->
Vervoer
Transportation options to IJmuiden Netherlands from Amsterdam Airport Schiphol (AMS), or train Amsterdam Central Station are:
From Amsterdam Airport Schiphol (AMS)
-
It is easy to rent a car from the airport, or
-
Taxi or Uber to the IJmuiden location
-
Public transport is also available and reliable. You can easily plan your trip on 9292 Travel with us
-
Take a train (NS Sprinter) at Schiphol Airport train station to Amsterdam Sloterdijk, then transfer to a bus (Connexxion R-Net Bus 382) to bus stop IJmuiden aan Zee, IJmuiden. It takes about 70 min in total.
-
From Amsterdam Central (train) Station
-
Taxi or Uber to the IJmuiden location
-
Public transport is also available and reliable. You can easily plan your trip on 9292 Travel with us
-
Take a train (NS Sprinter) at Amsterdam Central Station to Amsterdam Sloterdijk then transfer to a bus (Connexxion R-Net Bus 382) to bus stop IJmuiden aan Zee, IJmuiden. It takes about 55 min in total.
-
Arriving by car
-
Follow directions to Amsterdam. When approaching Amsterdam, follow the signs to Haarlem and when approaching Haarlem, signs for IJmuiden will be visible. Follow signs to Ijmuiden aan Zee and you will arrive at both locations.
-
Basecamp and the Lenoardo hotel are adjacent to a large parking lot with over 1500 parking spaces. The costs are €14 per car per day.
Registratie is nu gesloten
Hartelijk dank aan alle families en onderzoekers die zich hebben aangemeld. We kijken ernaar uit u te ontmoeten op de conferentie van 19 tot en met 21 juni. Heeft u vragen of wijzigingen? Stuur dan een e-mail naar info@foxp1.org.
De International FOXP1 Foundation (IFF) is niet verantwoordelijk voor uw accommodatie of vervoerskosten van en naar de conferentie.
De conferentie zal in het Engels zijn, maar er zullen vertaalmogelijkheden in de hoofdtalen zijn via applicaties (meer details volgen vóór de conferentie)
Family Registration costs
-
$50 USD per family
-
$25 USD per single person
-
Payment is required at time of registration
-
The International FOXP1 Foundation (IFF) is again subsidizing the registration costs to make it more affordable for families.
-
We hope that you will be able to donate additional funds to the foundation to help with the costs of the conference
Registration fee includes:
-
The registration fee includes the conference, Thursday Meet and Greet and dinner, Friday lunch and dinner and Friday childcare
-
Friday 20 June 9:00 - 17:00 hrs - Free child care/day program for all FOXP1 individuals and their siblings.
Conditions of Registration
-
Registration will close April 10th 2025
-
In case of cancellation the registration fee will be refunded until 1st June 2025
-
The family registration fee is for members of one immediate family. Extended family members (grandparents, aunts, uncles, or friends) should register separately as a family or a single person.
-
The child care/day program is only available to individuals with FOXP1 syndrome and their siblings. It is not available to extended family and friends such as cousins or children of friends
-
Additional information on your child's behaviour will be asked closer to the conference date. Please ensure all information is provided when requested so the organizers can plan for a safe and fun child care /day program.
-
If there is a possibility to bring your own caretaker we strongly recommend this. Due to the multilingual group it will be difficult to provide caretakers that speak all languages.
Program Research Conference
Thursday 19 June 2025
09.00 – 17.00 Conference day for researchers and practitioners / medics at the Leonardo Hotel
-
Family members who are interested are welcome to listen and learn. However, child care program will not be available on this day.
18.00 – 20.00 Dinner at Leonardo Hotel with researchers and families
Program Family Conference
Thursday 19 June 2025
16.00 – 18.00 Arrival and Meet & Greet Leonardo Hotel
18:00 - 20:00 Dinner at Leonardo Hotel with researchers and families
Friday 20 June 2025
FOXP1 and Siblings Program
09.00 onwards Drop-off kids ReGer BaseCamp
09:00 - 17:00 Activities in BaseCamp for FOXP1 individuals and siblings of all ages
Parent/Caregiver Program
09:00 - 12:00 Morning conference for adults in Leonardo Hotel featuring Key speakers discussing various FOXP1 research topics
12.00 – 13.00 Lunch at the Leonardo Hotel for presenters, adults and children
13.00 – 16.30 BreakOut sessions at the Leonardo Hotel Different symptoms and interests, moderated by a specialist on the topic
13:00 - 14:00 Country-specific session
14.00 - 15.00 Topic 1
15.00 - 15.30 Break
15:30 - 16:30 Topic 2
16:30 - 17:00 Closing ceremony
17:00 - 19:00 Dinner and Bites at Leonardo Hotel
Saturday 21 June 2025
10.00 – 11.30 Walk on the Beach and share insights
Ontmoet onze gastsprekers
Simon Fisher
Directeur, Max Planck Instituut voor Psycholinguïstiek, Hoogleraar Taal en Genetica, Donders Instituut voor Hersenen, Cognitie en Gedrag, Faculteit der Natuurwetenschappen, Radboud Universiteit Nijmegen Fellow, Max Planck School of Cognition, Duitsland
Siddharth Srivastava
Kinderneuroloog, neuroontwikkelingsspecialist
Annette Schenck
Hoogleraar - Faculteit Medische Wetenschappen
Sharyl Sfyffe-Maricich
Vice-president Moleculaire en Celbiologie, Translationele Wetenschappen
Willeke van Roon Ph.D.
Hoogleraar menselijke genetica
Saskia Koene Ph.D.
Klinisch geneticus
Caroline Pearson
Universitair docent onderzoek in de neurowetenschappen
Ruth Bradon
Docent Logopedie
Heather Renton
Freelance consultant consumentengezondheid en -beperkingen en FOXP1 PARENT
Annemiek Linn
Universitair hoofddocent Gezondheidscommunicatie
Gudrun Rappold Ph.D.
Menselijke moleculaire genetica - Afdeling menselijke moleculaire genetica, medische faculteit van de Universiteit van Heidelberg
Luke Wall
Universitair hoofddocent kindergeneeskunde - LSU en kinderziekenhuis
Tiong Tan
Klinisch geneticus - Murdoch Children's Research Institute
Roxana Redis
Adjunct-wetenschappelijk directeur - Charles River Laboratories
Giacomo Mancini
Adjunct-directeur Klantenservice - Charles River Laboratories
Cora Taylor
Universitair hoofddocent - Geisinger
Marianne Kasius
Kinderpsychiater - LUMC/Banjaard
Clarie Dekker
Therapeut - Banjaard
Samit Dasgupta
Hoogleraar Wiskunde,
Duke Universiteit
